Associations and Institutions
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Group B Strep Association USA
(That's Us!)
PO Box 16515, Chapel Hill, North Carolina 27516
919.932-5344
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Group B Strep Association of Canada
343 Watson Ave., Windsor, Ontario, Canada N8S3S3
519.948.6324
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Group B Strep Support of Europe
Jane and Robert Plumb
Haywards Heath, West Sussex RH16 1GF UK
email: [email protected]
(44) 1.444.416176
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Centers for Disease Control (CDC)
Childhood and Respiratory Diseases
1600 Clifton Rd., NE, Atlanta, GA 30333
404.639.2215
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American College of Obstetricians and Gynecologists
409 12th Street S.W., Washington, DC 20024-2188
800.673.8444
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American Academy of Pediatrics
141 NW Point Blvd., Elk Grove Village, IL 60007
800.433.9016
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National Health Information Center
(NIHC)
NIHC is a federal health information and referral service from the Office of Disease Prevention and Health Promotion, US dept of Health and Human Services.
PO Box 1133
Washington, DC 20013-1133
Attention: Healthfinders Update
fax 301-770-5800
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National Institutes of Allergy and Infectious Diseases
Bacterial Vaccines Program Officer
Respiratory Disease Branch
DMID/NIAID/NIH
Westwood 750, Bethesda, Maryland 20892
301.496.5305
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March of Dimes
Birth Defects Foundation National Office
1275 Mamroneck Avenue, White Plains, NY 10605
email: [email protected]
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Other Related Links
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A Place to Remember
1-800-631-0973
A Place To Remember is committed to publishing and providing uplifting support materials and resources for those who have been touched by a crisis in pregnancy or the death of a
baby.
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BabyCenter.com
BabyCenter is the newest, most complete resource for pregnancy and baby information on the Web. The site is dedicated to helping expectant and new parents find the information, support, and reassurance they need. That includes high quality, medically reviewed articles and a community of supportive, helpful fellow parents.
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Disability Research Network (DRN)
1-800-447-4221
Information providers of disability related topics and equipment for a nominal charge of $10. If you are an Illinois resident, the information is free. If you are in the Springfield, IL area call 217-523-2587.
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ERIC for Parents
The Educational Resources Information Center (ERIC), a popular resource for educators, also offers a wealth of information for parents. Funded by the US Dept of Education, the ERIC system is celebrating 30 years of collecting and providing information about education issues and practices. Parents can use ERIC to locate information about educating children with special needs, understanding performance assessment, or helping your child with science or math. ERIC is set up as a number of clearinghouses. Start by calling 1-800-LET-ERIC (538-3742) during normal weekday business hours to order free brochures or to obtain referrals to the clearinghouse that can best answer your question. You may also send an e-mail to [email protected].
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Family Web
Family Web is a great resource for many pregnancy and family related issues
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Friend's Health Connection (FHC)
1-800/48-FRIEND
A non-profit organization that provides customized support for individuals and/or their families with health-related problems. FHC connects people who have the same health problems on a one-on-one basis so that they can communicate for friendship and mutual support. FHC charges a nominal fee of $20 or whatever you are able to donate.
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Group B streptococcus
Group B streptococcus infections
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Guideposts FIND (Family Information Network Database)
1-800-233-0773
A free, confidential service that gives individuals a personalized listing of agencies and programs relating to particular interests or needs. FIND is one of the many outreach services offered to the general public through Guidepost Ministries, and is supported by contributions to Guideposts. GUIDEPOSTS FIND has information on a very wide range of topics from Adoption, Aging, Child Development Deafness, Education, Housing, Inspiration, Parenting, Teens, Veterans, Violence...over 2,000 organizations! They can also be reached at Guideposts Ministries FIND, P.O. Box 855, Carmel, NY 10512.
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MedScape
The Online Resource for Better Patient Care
Medscape®, for health professionals and interested consumers, features thousands of free full-text, peer-reviewed articles, medical news, MEDLINE, and interactive quizzes. Updated daily!
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National Patient Air Transport Hotline (NPATH)
1-800-296-1217
Charitable Air Medical Transport System hotline that makes multiple sources of charitable air medical transportation available to almost anyone in the United States.
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Survey for Parents of GBS Disabled Children
Celeste Chippero, along with other GBSA parents, has produced a 5-part survey for parents of GBS disabled children. "The intent of this survey is to find out if our children have been similarly disabled and to share information that can help us help our children", says Celeste, the mother of a GBS disabled son.The results of this survey will be summarized and returned to those who participate. It is our hope to have this information as a tool as we advocate for our children in the schools and with health professionals. This survey was put together by parents whose children were affected by GBS infections. If you would like a copy of the survey, please send a self-addressed, stamped 55 cents, legal envelope to GBSA, Attention Parent Survey, PO Box 16515, Chapel Hill, NC 27516.
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The National Information Center for Children and Youth with Disabilities (NICHCY)
1-800/695-0285
Providers of information on disabilities and disability-related issues for families, educators, and other professionals. Our special focus is children and youth (birth to age 22).
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Woodbine House Parent's Guide
1-800-843-7323
A valuable resource for a family that is just learning about their child's disability and continues to be a useful reference as a child enter primary school. Woodbine House offers many wonderful books called the Special Needs Collection, from Children with Visual Impairments, The Special Ed. Sourcebook, Laying Community Foundations for Your Child with a Disability. Call toll-free for their free catalog or write 6510 Bells Mill Road, Bethesda, MD 20817, 301/897-3570.
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